Establishing the value and business model for sustainable eHealth services in Europe
|Participant no.||Participant organisation name||Participant short name||Country|
|1||European Institute for Health Records||EuroRec||FR|
|2||Ministère des Affaires Sociales et de la Santé||FRNA||FR|
|3||Health & Social Care Information Centre||HSCIC||UK|
|6||Serviços Partilhados do Ministério da Saúde||SPMS||PT|
|7||empirica Gesellschaft für Kommunikations- und Technologieforschung mbH||EMPIRICA||DE|
|8||Data Mining International||DMI||CH|
|9||Research in Advanced Medical Informatics and Telematics||RAMIT||BE|
|10||European Health Telematics Association||EHTEL||EU|
The European Institute for Health Records is an independent European not for profit organisation founded in 2003, federating national ProRec centres and/or accredited partnering organisations and promoting development and use of high quality EHR systems. EuroRec has participated in or co-ordinated almost 80 European projects, including many relating to the interoperability of electronic health records. In particular EuroRec is the scientific lead for the Network of Excellence on semantic interoperability, as well as a partner in projects dealing with interoperability for patient summaries, EHRs, pharmacovigilance and clinical research. EuroRec staff play world leading roles in the development of EHR interoperability standards through CEN and ISO.
EuroRec is organised as a permanent network of National ProRec centres and provides services to industry (developers and vendors), healthcare providers (buyers), policy makers and patients. One of its main missions is to support the development of EHR systems quality labelling and certification. EuroRec has developed a repository of +1700 validated functional quality criteria for EHR systems, categorised, indexed and translated in 19 European languages as well as a series of tools for using these criteria in the context of quality labelling/certification, procurement and product documentation. EuroRec has published seals to initiate the harmonisation of EHR-systems, supporting the cross-border interoperability of those systems within Europe.
The Ministry of Social Affairs and Health is responsible for laws, regulations and national policies within the fields of health, public health, medical and social care, patient safety & security and social services. In the eHealth area, the MoH is coordinating, through a dedicated permanent structure national policies and follow-up of the National Strategy for eHealth.
The Health and Social Care Information Centre is the national competence centre for ehealth in England. The HSCIC is responsible for collecting, transporting, storing, analysing and disseminating the nation’s health and social care data. Its information services and products are used extensively by a range of organisations to support the commissioning, delivery and regulation of services, to support research and academic studies, and to provide targeted information to patients, service users and the public. It delivers national IT infrastructure, information systems and standards to ensure information flows efficiently and securely to support the health and care system.
Regione Lombardia General Directorate for Health is responsible for healthcare policy design, implementation and delivery to its 10 million citizens. The General Directorate for Health holds the regulatory and administrative competencies in the healthcare domain, including planning and supplying, quality monitoring and control, appropriateness and efficiency of services. As regional governing authority Lombardy plans its own programming and strategies in prevention area based on efficacy, effectiveness and sustainability criteria and multi-stakeholders approach.
SPMS is the Health Ministry Central Purchasing and IT authority. It is a public enterprise created in 2010 functioning under the guardianship of the Ministries of Health and Finance. Its aim is to provide shared services – in the areas of purchasing and logistics, financial services, human resources and ICT – to organizations operating specifically in the area of health, in order to “centralize, optimize and rationalize” the procurement of goods and services within the NHS.
SPMS has a dedicated budget to EU projects which has been using to ensure its participation, as well as allocated staff. It is been created a specific Department for international cooperation. Currently, SPMS is involved in the following EU projects: EXPAND as coordinator, epSOS, e-SENS and Trillium Bridge. Portugal is equally involved in the eHGI and PARENT project and has created a “cross-border eHealth team” to articulate a national view on projects. Portugal, through SPMS is member of IHTSDO since 1st January, 2014.
empirica Communication and Technology Research based in Bonn, Germany, is a private research and consultancy specialised in innovation processes and the management large-scale European projects for both private and public clients.
empirica has established itself as a leading European and global institute with a broad understanding of the political, strategic, clinical, business and socio-economic questions raised by health system change and eHealth tools. It has provided services to the European Parliament, European Commission, WHO, OECD, European Space Agency, national and regional governments, healthcare providers, and global eHealth industrial players. This is complemented by its global experience in applying advanced, but pragmatic benefit-cost assessment methods to health system related delivery processes and outcomes. empirica is thus in a position to develop and validate future-proof policies, sustained strategies, business cases, and exploitation scenarios for eHealth supported healthcare delivery.
empirica has long-standing expertise in the analysis of new technology opportunities against user requirements and business models. In this role, empirica helps bridge the widening gap between new developments in technology and their application in ways fully meeting user needs. At the same time, this practical work provides a solid foundation for drawing up realistic proposals for strategic choices to public and private institutions and associations. Its body of expertise ranges from long-term policy and strategy development to rapidly implemented pilot trials and case studies of current practice.
Data Mining International Data Mining International SA (DMI) is an independent international research agency (SME) based in Geneva (Switzerland). DMI is specialized in advanced simulation modelling for decision-making in public health, risk and priority assessment for health planning, multi-criteria analyses, health technology assessment, business modelling innovation, and optimal disease management strategies. DMI has managed international projects worldwide for the World Health Organization (WHO): Yellow Fever Risk Assessment initiative, Meningitis outbreaks prediction modelling in Africa, Human influenza global risk assessment and country capacity to respond. DMI is also very active in European research as scientific coordinator or partner (FP7-ECHOUTCOME, FP7 SEMANTIC HEALTH NET, SANCO FLURESP), or as sub-contractor in IMI (EHR4CR) and SANCO projects (EGOHID). DMI brings innovative solutions to international and national health organizations from the public and private sectors, including academia, public health and regulatory organizations, and other interest groups and stakeholders. Through its activities in applied research in public health on one hand, and the organization of special conferences and workshops on the other, DMI has developed a network of public health activities at regional, national, and international levels.
DMI has developed a unique experience in the development of value propositions, innovative business models design, and cost-benefit assessment for innovative products, business strategies and organizations.
RAMIT vzw is a non-profit association established with the support of the State University of Ghent. The membership of RAMIT is restricted. Founding President is Prof Dr Georges J.E. De Moor and Directors are, amongst others, the Rector of the Gent University and the Dean of the Faculty of Medicine (both qualitate qua). The working-team in RAMIT is multidisciplinary: medical doctors, engineers, informaticians, statisticians and secretarial staff. Recent activities include successful national, European and International projects dealing with e.g. electronic medical record systems, health statistics, bioinformatics association studies, decision support systems, electronic health data interchange, eHealth standardization and interoperability, security, natural language processing and computer assisted instruction in medicine.
RAMIT has participated successfully in more than 90 National and International R&D projects (often in a co-ordinating capacity) in both the framework of EU-Research Programmes (since the second EC Framework Programme) and of national R&D Programmes. RAMIT’s R&D activities resulted in the creation of five spin-offs.
Being an experienced coordinator of (many) EU funded projects, it has implemented a set of online tools to support the Online Collaborating Spaces.List of relevant publications, products, services or other achievement:
EHTEL is the association that brings together under one roof a wide range of constituencies crucial for the betterment of health and social care with health IT. EHTEL provides its more than 60 corporate members with a platform for information, representation, networking and co-operation to its 60+ corporate members. With EHTELconnect (www.ehtelconnect.eu), the association draw on the expertise of EHTEL’s highly experienced and multi-stakeholder membership to offer expert advice and educational services to individuals and organisations working in the field of digital healthcare. EHTEL has experienced the coordination, management and engagement with the European networks and projects: MOMENTUM Thematic Network, ENGAGED, EIP on AHA – B3 Action Group on Integrated Care. EHTEL is the leading forum for decision makers and doers in Europe, engaged in supporting the transformation of the health care practice in Europe through eHealth.
The research plan to be implemented throughout the project’s life cycle requires effective project management to deliver high quality results. The project management approach chosen guarantees transparency and commitment to all partners and facilitates successful project execution.
Consortium bodies and key actors in the management structure are depicted in the figure below. Duties, responsibilities and rights are codified and agreed in the project Consortium Agreement.